Getting The Support You Need

To assist you in your search for information, the AHA Resource Center has developed the following list of consumer-oriented health care web sites. Inclusion on this list does not imply a recommendation or endorsement of the information provided, nor constitute any warranty of the accuracy of the information on the web sites.

A Consumer Guide for Getting and Keeping Health Insurance
State-by-state information on your rights under federal and state law that will protect you when you seek to buy, keep, or switch your health insurance (Georgetown University Health Policy Institute)

A Consumer Guide to Handling Disputes with Your Employer or Private Health Plan
This guide will help you navigate your employer or private health plans internal grievance procedure. (Kaiser Family Foundation)

Web-based tool that helps you identify the public and private prescription savings programs you qualify for. (Access to Benefits Coalition and American Hospital Association)
Links to resources for support of cancer patients and their families. (National Cancer Institute)

Caregivers: Elders and Families
Information and assistance for gaining access to supportive services in your community. You can also tap into a variety of caregiving resources, including where to find help, ways to take care of others and yourself, joining a caregiver support group, and a variety of other useful resources and ideas. Available in Spanish, Portuguese, Chinese, German, French, Italian, Japanese, and Korean. (Administration on Aging)

Conversations Before the Crisis
This resource guide helps the elderly and children of the aging start conversations among family members on end-of-life wishes. The booklet also includes a resources listing with helpful books and web sites. (Last Acts)

Coping with Chronic Illness
Information to help patients and their families cope with chronic illness. (National Institutes of Health)

Financial Assistance and Debt Crisis Intervention
Guidelines for persons suffering financial distress resulting from an illness. (Patient Advocate Foundation)

Financial Assistance for Cancer Care
List of government agencies and voluntary organizations that have financial assistance programs. (National Cancer Institute)

Find a Geriatric Care Manager
Searchable directory of geriatric care managers, professionals who specializes in assisting older people and their families in meeting their long-term care arrangements. (National Association of Professional Geriatric Care Managers)

Handbook for Mortals: Guidance for People Facing Serious Illness
Online book written by specialists in the field for families that are caring for a loved one who is seriously ill. Contains advice on how to make decisions about care, where to find support and treatment resources, how to communicate with physicians, how to get effective pain management, when to let go of medical treatment, and other fundamental concerns. (Americans for Better Care of the Dying)
Interactive web site that links you to medicines offered through patient assistance programs sponsored by corporations and government and local organizations. (Pharmaceutical Research and Manufacturers of America)

Hospitalization Happens: A Guide to Hospital Visits for Loved Ones with Memory Disorders
A guide to help you prepare for both unexpected and planned hospital visits with someone who has a memory disorder. (Alzheimers Disease Education and Referral Service)

Long Term Care Ombudsman Programs
Links to state long-term care ombudsman programs that investigate and resolve complaints made on behalf of older adults in long-term care facilities. (National Long Term Care Ombudsman Resource Center)

Low-cost Health Care
Searchable directory of primary care centers for underserved populations. (Bureau of Primary Health Care)

Navigating the Appeals Process
Advice for patients and their families for working through the appeals process with their insurers. (Patient Advocate Foundation)

Obtaining Free Care
Information on receiving free or reduced cost care under the Hill-Burton program. (Health Resources and Services Administration)

Patient Pal
Directory of resources for cancer patients and their families needing assistance with insurance issues, job retention and debt crisis intervention. (Patient Advocate Foundation)

Personalized Help
Professional case managers and attorneys advocate on behalf of patients experiencing issues related to access to care, job retention, and debt crisis. (Patient Advocate Foundation)

Resource Directory for Older People
A database of information about organizations that serve older adults, including federal and state agencies, Administration on Aging-supported resource centers, professional societies, private groups, and volunteer programs. (National Institute on Aging and Administration on Aging)

SHIP Programs
Links to state programs that offer one-on-one counseling to assist Medicare beneficiaries understand their health insurance benefits and options. (State Health Insurance Counseling and Assistance Programs)

Self-Help Group Sourcebook
A searchable database that includes information on over 800 self-help support groups, ideas for starting groups, and opportunities to link with others to develop needed new national or international groups. (American Self-Help Clearinghouse)

State by State Financial Resource Guide
Information for patients seeking financial relief for a broad range of needs including housing, utilities, food, transportation to medical treatment, and children’s resources. (Patient Advocate Foundation)



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