The Health Resources and Services Administration is requesting public comments on its recommendation to add metachromatic leukodystrophy and Duchenne muscular dystrophy to the Recommended Uniform Screening Panel. The RUSP is a list of disorders that the Secretary of the Department of Health and Human Services recommends for states to screen as part of their state universal newborn screening programs. HRSA said it is seeking comments that address the potential benefit of early screening for the conditions within the newborn period, the ability of state newborn screening programs to screen for them and the availability of effective treatments. Comments are due by Sept. 15. 

Headline
The Social Security Administration today announced actions to help parents enroll newborns in Trump Accounts, which are investment accounts for children under…
Headline
Sara Bode, M.D., pediatrician and medical director of School Health Services at Nationwide Children’s Hospital, and Carneshia Edwards, lead of the Kindergarten…
Headline
The AHA invites hospital leaders from organizations that care for children with medical complexities to join a roundtable for peer learning, collaboration and…
Headline
The Health Resources and Services Administration Maternal and Child Health Bureau has announced grant opportunities available supporting maternal and child…
Headline
President Trump signed an executive order May 29 that directs the Centers for Disease Control and Prevention and the Advisory Committee on Immunization…
Headline
The AHA and other national health care groups sent a letter to members of the House and Senate appropriations committees, urging them to provide $1.…