The House Energy and Commerce Subcommittee on Health Feb. 29 held a hearing on legislative proposals to expand access to treatment for patients with rare diseases, which included two hospital witnesses.

Alexander Bassuk, M.D., physician-in-chief at the University of Iowa Stead Family Children’s Hospital, urged Congress to pass the Accelerating Kids Access to Care Act (H.R. 4758), legislation that would enable providers to enroll in Medicaid programs in other states to improve children’s access to essential health care while reducing administrative burden.

Aaron Kesselheim, M.D., director of the Program On Regulation, Therapeutics, And Law at Brigham and Women’s Hospital, urged Congress to advance the Retaining Access and Restoring Exclusivity Act (H.R. 7383), legislation that would limit orphan drug exclusivity to the approved indication to encourage market competition. 
 

Related News Articles

Blog
Since 2018, Black Maternal Health Week has been a national observance from April 11–17. This annual observance was created by the Black Mamas Matter Alliance…
Headline
Two caregivers discuss how Colorado’s San Luis Valley Hospital creatively maximizes its resources to continue to deliver obstetric services to the families and…
Headline
Health Services Research, the flagship publication of AHA’s Health Research & Educational Trust, seeks abstracts through June 17 on potential manuscripts…
Headline
As part of a yearlong series devoted to rural hospitals and health systems in America, two experts from Intermountain Health discuss their "First 1,000 Days of…
Headline
The Centers for Medicare & Medicaid Services March 28 issued a proposed rule to update hospice payment rates for fiscal year 2025. CMS proposes a 2.6% ($…
Headline
The Centers for Medicare & Medicaid Services March 28 announced an extension of its temporary Marketplace special enrollment period for those who lost…